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graves disease progression, "description of graves disease"

We notice that you are interested to learn more about graves disease.

Below, you will find a selection of comments and key information relating to this area. We hope you find this information of help. Best wishes, Sam - Thyroid Talk.

Most recent comments from the thyroid forum relating to graves disease and including graves disease progression, description of graves disease. Please note that in some cases, there have not been any replies to comments posted on the forum. You can join the thyroid discussion at any time.

Post:I have read alot about it but, it does not state if the infant will also suffer from the same effects(such as eyes) as an adult. I have failed to find much about the test that should be done to tell a pregnant woman she might pass this on to child, seems my dr. didn't know about it I guess.If I have another child I am wondering what tests should be done, so that way I can avoid this happening again, and does anyone know what kind of treatment they give the mother to treat this?

Reply: Hiya. I found this site:- http://www.4woman.gov/faq/graves.htm#h

that had the following advice but it also had some Internet address for sites that may help, especially the one for the Graves’ Disease Foundation of America.

It said if you have graves disease and get pregnant that it is important to get checked out by doctors more often. And you will need to see both your obstetrician and an endocrinologist. Pregnancy may cause changes in hormones that affect the thyroid and can affect a growing baby. So the treatment needs of pregnant women often change, and an experienced doctor is needed to regulate your medication properly.

Go take a look at the site and maybe check out some of the other sites they show. Hopefully they will have more detail for you and you can collect information to take back to your doctor.

Maybe you could give us an up date on what you found and how it went at the doctors.

Hope this helps.

Post: Hi Sam, thanks for the blog and chat room. I just found your site, and it looks great. Is there anyone out there with info on how you're supposed to feel 1 year post RAI?

Reply: Well how do you feel after one year? I guess it all depends on the individual. There
are so many mixed stories about RAI and I am sure it is always best to get the advice of people who are going through it. Here is one good link for you. http://hometown.aol.com/lisareynolds64/myhomepage/personal.html

I wish you well. Trish

Reply2:

This is a list of the symptoms that I have developed since I had RAI done in
April, 1998

1. Huge weight gain. All the weight gain is around my abdomen, on my
back, around my shoulders, around my neck and on my face. My arms and legs
have not gotten proportionally fatter. I gained about 20 lbs. in the first 6
months after RAI. Between June 2, 2000 and August 30th, 2000 I gained a
total of just over 50 lbs. Since September 2000 I have gained another 30
lbs.

2. Sleep is but a distant memory because I wake up several times a
night. I wake up for two reasons. One reason is because my legs are crawling
so badly that I cannot lie still. The other reason is that at times I
literally get jolted awake by what I can only describe as adrenaline rushes
in my stomach. Whether I wake up because of the horrible adrenaline rushes
or because of the crawling in my legs, I spend about 1 to 1 1/2 hours pacing
the floor before I can fall asleep again. This happens three to four times a
night. I am literally beyond exhausted!

3. I have terrible intermittent pain in my hips, legs and Achilles
Tendons. The bones in my hips, feet and legs hurt. My Achilles Tendons both
hurt to the point where I can no longer properly lift my heels off the floor
when I walk.

4. Climbing stairs is very difficult. The muscles in my legs are gone!
When I walk up my basement stairs I actually get cramps and pain in the
muscles in my thighs and calves. When climbing stairs my legs feel like they
have turned to rubber and will buckle under me. This happens all summer long
even though I swim an average of three hours every day from May until
September . When I say swim, I mean swim. My 7-year-old grandson, an
excellent swimmer, expects me to be Wanda the Whale when we swim together.
You can imagine all the energy I have to exert as Wanda! This consistent and
constant daily exercise during the summer does absolutely nothing to
strengthen my muscles.

5. I usually feel sick to my stomach or very lightheaded after any
kind of exercise.

6. My face has changed its shape. It is very hard to describe but I do
not look like I did two years ago. People who have not seen me in the last
twelve months do not recognize me.

7. I have suffered from high blood pressure for years. I have been on
high blood pressure medication for 3 1/2 years.

8. I retain fluids to the point where my hands and feet swell up and
my eyes are just slits. I have been on a diuretic since October 1999.

7. I have a mild hump at the back of my neck, which is becoming an
aggravation as well as painful when I put my head back.

8. My eyesight has deteriorated very much over the last two years. I
find this very frightening and worrisome. My peripheral vision has been
affected.

9. I have constant buzzing in my ears. This combined with my vision
problem and hearing problem causes me to become very disorientated. At times
objects will literally float in front of my eyes. The disorientation causes
me to become dizzy and nauseous.

10. I have had problems with boil like eruptions in some unmentionable
places on my body. They look like angry red and purple boils. Sometimes they
get as big as a dime. In the last little while I have been getting them on
my stomach and under my armpits. Quite often these boils will appear over
and over again in the exact same place.

11. I have lost all the hair under my arms.

12. I have noticed that I now have big purple veins showing through my
underarms, my breasts and stomach area. I also have areas where the blood
veins seem to have burst leaving spider like purple marks. I also have
vertical white stretch marks.

13. When I exert myself in the least little bit, like putting dishes
in the dishwasher, I will sweat so much that the water runs down my neck and
back. The sweat comes from my head and neck area.

14. I have a lump on each of my Achilles Tendons. The lumps are
painful to touch.

15. I have a constant thirst. I drink continuously and of course as a
result spent a lot of time in the bathroom.

16. I have had high sodium levels, high cholesterol levels, high BUN,
low potassium, high Urine volumes (over 4 liters), high Creatinine levels,
below normal Arginine Vasopressin levels, high ESR and high C reactive
protein levels.

When I try and discuss these symptoms with the physicians supposedly
involved in my care, the standard answer is "I really have no idea why you
would have these symptoms or these abnormal lab results!"

Added September, 2001

A little while ago, I questioned No Name about my abnormal lab
results. I was particularly interested in why I had low potassium, high
cholesterol, a high ESR result and a high C Reactive Protein result. I also
wanted to know what could be done to correct these problems. No Name sat for
a moment in what I presumed to be "deep thought." He then looked at me and
answered with "I really have no idea what to do." I thought to myself "so
much for deep thoughts" and told No Name that IF and WHEN he had an idea he
could call me."

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